Extending experimentation: oncology’s fading boundary between research and care

Alberto Cambrosio, Peter Keating, Etienne Vignola-Gagné, Sylvain Besle, Pascale Bourret

Research output: Contribution to journalArticlepeer-review

18 Scopus citations

Abstract

Historians and social scientists view the distinction between research and care as diachronically and synchronically contingent, rather than transcendental, as is often the case in bioethics. Comparing how the notion of total care was used in the 1950s with present-day use of that same term by genomically informed oncology programs, the paper argues that the distinction between research and care needs: to be historicized, by examining its repeated emergence and re-definition, and the shifting relations between these two “ideal-typical” components; and to be problematized, by paying attention to the entities, practices, and institutions that are constitutive of the successive regimens that have punctuated oncology’s development. Shifting to contemporary activities, the paper examines how the recent massive injection of molecular biology and high-throughput genomic technologies in the field of oncology has been accompanied by a reshuffling of the research/care distinction, a process that is leading to new forms of “experimental care”.

Original languageEnglish
Pages (from-to)207-226
Number of pages20
JournalNew Genetics and Society
Volume37
Issue number3
DOIs
StatePublished - Jul 3 2018
Externally publishedYes

Keywords

  • clinical care
  • clinical research
  • genomics
  • molecular tumor boards
  • oncology
  • total cancer care

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